March 21st is World Down Syndrome Day because most people have 46 chromosomes (23 pairs.) But people with Ds have an extra one on chromosome 21. So 3/21 has become a day to celebrate all those "with an extra" as it's known in the world of Down Syndrome.
We found out Beth had Down Syndrome after she was born. We called our family and asked them to come to the hospital, so we could tell them all together. We were a little surprised because there was no inclination during the pregnancy, not even a hint that anything was different. They asked a lot of questions about Down Syndrome which we couldn't really answer because we didn't know ourselves. But we all instantly fell in love with her!
Getting ready to go home
A few months old
Since she was our first baby we didn't really know what to expect, Down Syndrome or not. She learned to sit up at one year and learned to walk at two.
When she was two the social worker recommended she start preschool to give her the best possible start to education. Chuck and I talked it over and decided to try it, so with a lump in my throat I put our two year old on a school bus! And she loved it!
Then we had Sharaya. And then Diana. And we just... raised our kids. Taking one day at a time. Trying to figure out what worked best for each of them. You know, parenting!
And then, before you know it -
Sharaya and Diana learned to drive cars, got married, had kids... all things Beth will never be able to do. She struggled when Sharaya first got pregnant and Sharaya remembers Beth not speaking to her for a long time. Was Beth confused about what was happening to Sharaya (did I not explain it to her?) or was she sad that she might never get to have kids? It's really hard to know.
But today Beth loves her life. She loves having her own apartment downstairs in our daylight basement. She's got her own space but has family close by if she needs help with something. She loves her family, her sisters, her brother, and her nieces and nephew. She loves riding DART to her day programs - Karaoke and bowling. She loves her job and the people there love her. And she loves her church. We started going there when she was just 4 years old. She knows her way around there better than most.
People with Down Syndrome love their routines. (So do some of us without Down Syndrome! 😊) And Beth has made some pretty good ones. Happy World Down Syndrome Day.

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4 comments:
Thanks for this- sometimes having a child with DS, it's hard to believe that the future can be bright. My daughter is 13, and we're emerging from some hard years. Seeing your daughter loving life helps me feel better about where my girl might be as an adult.
And my goodness, was Shea cutie as a little kid!!
Thanks for sharing your journey with us! Happy Down's Syndrome Day!
Thank you for sharing your family with us! Happy World Down Syndrome Day to Beth and your entire family. Beth is a blessing to so many! xo
Happy belated Down Syndrome Day to Beth and all of you! Blessings!
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