About the time I think this is all behind us, I follow a rabbit trail on line (I've got to stop doing that!) or something comes up that reminds me we're still in the fight of our lives.
They did a biopsy a couple months ago on one of the spots on his scalp and it came back negative for cancer. That spot is just that, a spot of leftover pigment that will disappear in time. Not sure about the others.
The biopsy on his lymph node however was positive. Which is what we've always suspected but I was hoping that it was nothing. Just a swollen gland or whatever. But nope. It's cancerous.
The second treatment they were going to do wasn't approved by our insurance. They'd pay for it, just not in conjunction with the first treatment. So the doctors are discussing our options.
I didn't realize how long a battle this would be. I thought after the initial surgery, they would have gotten it all and we'd be done. Boy was I wrong!
In the meantime he continues to work and feels pretty good. He's dealing with severe psoriasis right now, a side effect from the infusions. We met with the dermatologist yesterday and he said given the cancer still in the lymph node and now the psoriasis, Chuck's team of doctors are talking about changing his immunotherapy treatment to try and knock out the cancer. At this point we don't know what that will be.
His next scan and infusion is scheduled for the 19th.
We're coming up on the one-year mark of his diagnosis and it seems it's been one thing after another: two different cancers, two surgeries, several biopsies, so many doctors appointments, various treatments... and we still have a long way to go. It's starting to take it's toll.
I want to thank you for your prayers. Even though we've never met, your friendship and the caring words you've written over the last 10 months mean so much to me. Thank you...
1981 - After we got engaged