I'm finally joining the Blog Hop from The Bates Motel. Almost didn't make it in time, but here I am! The question she asked was, "What mysteries do you want to see unraveled for the future for your child with Down Syndrome?
My first thought after reading that sentence was, the mysteries of aging. Beth is 28, will be 29 in just a few months and her 'twilight years' as they've been called, make me nervous. When Beth was born people with Down Syndrome lived only to their 20's. Now though, they live to be 50 or 60 and if that's true, Beth is middle aged. So what does that mean, exactly?
I've wondered lately if I need to schedule her for a mammogram. Does she need one? Is now the time to start having those?
I'm in my 50's and I know the aches and pains I'm starting to have... is she having them as well? Sometimes when we go for walks she'll start walking funny, with her arms swinging wide and her back is arched. She says her back hurts. Is it due to her excess weight? Or does she have narrowing between the discs in her spine? My doctor says it's more common in people my age. It's just what happens when you reach your 50's. Oh joy. Is that happening to Beth as well?
If they don't live as long, do their bodies go through the aging process earlier?
What about menopause? Should I be looking for signs of that already? And Alzheimer's. That scares me too. I know some of this could be answered by a simple trip to the doctor, but I also believe the doctors don't know everything about people with Down Syndrome.
I was just reading over at Grown Ups and Downs that she was at a conference where they talked about scientists who are studying the exact things I'm nervous about. I'm a little relieved to know I'm not the only one thinking about these things. I'm also grateful there are people out there doing something about them.